What is the Guided Questions Tool and why and how was it created? Hear from Amy Basken, Director of Programs at the PCHA, and Julie Lavoie, PhD, CPNP, MSN, MS, RD, Quality Improvement Manager at the Herma Heart Institute, talk through the history of the tool and their vision for every pediatric heart program to proactively provide answers to the questions.
Questions To Ask Your Child’s Heart Center
What Is the Guided Questions Tool?
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Questions To Ask About Your Cardiac Center
Questions 1 and 2:
- How many procedures do you perform each year?
- How many times have you and your program performed this procedure or ones like it in the last year? Over the last four years?
- What is the survival rate for this type of procedure at the time of hospital discharge? After one year?
How do your results compare to other centers' results?
A Closer Look at Cardiac Surgical Data
Questions like "How many procedures does your center perform every year?" seem like they'd be easy to answer. Hear from Julie Lavoie on the many ways a program can provide data to answer the question and how the Herma Heart Institute chose to answer.
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Question 4: Do you share your results with national data programs such as the STS Database or IMPACT Registry to help improve care? Is this information open to the public?
We were one of the first pediatric heart centers to endorse the public reporting of data to share information with families.
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Questions To Ask About Your Hospital Stay
Question 7: How many days do you think my child will be in the hospital, both before and after the procedure?
One example of our commitment to success is our Interstage Home Monitoring Program.
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Question 13: What do you do to help prepare parents to take their babies home from the hospital?
Our goal is to educate families well in advance of hospital discharge, so that there is a safe and smooth transition to home.
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Questions as You’re Looking Ahead
Question 15: What are the expected long-term results for this heart defect and its procedure? What is my child's life expectancy or how long is my child expected to live? Are there other possible lifelong problems that I need to watch out for?
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